Wednesday, August 1, 2012

Post CCSVI - How are you feeling now?

It's a week after my CCSVI procedure. The question of the day is of course, how are you feeling? I'm great! Well, I'm not running marathons and mountain biking but I'm great.

Marjorie after Atlanta Marathon Pre-MS


Beast of the East Adventure Race - Not quite ready for this.
Transition at Beast of the East Pre-MS - Yea, I was a B.A. despite what my kids think.


 I'm still hopeful! Well, not hopeful for extreme sports again. I'm hopeful for extreme contentment for a better quality of life. How about that? Extreme Contentment! Let's all give that a try.

Yep, I'm not doing cartwheels and walking is still a huge struggle but I am bubbling with excitement over the little things. I'm experiencing ever so slight improvements in lifting my right leg and the incontinence issues that are oh so common with MS have improved a tad, my thinking is more clear, I'm feeling slightly more stable, I'm able to stand for longer periods of time, I'm having less spasticity, I'm able to bend my right knee a little more and I have a tad more strength in my right hand.

Here's an example, I haven't been put on a necklace in probably two + years. I have put on my favorite necklace the last four days. Why? Because I can! And it's pretty.



Also, I've been typing all day. Usually my hand gives out after about 30 minutes to an hour. These are all very small improvements but the doctor said it could take a month or two to see results. I'm cherishing the improvements and thanking God all day long and holding on to more improvements.

Thank you for your continued prayers and support. God works through all situations and it's tangible how God is at work. I'm blessed and extremely grateful.


*Chronic Cerebrospinal Venous Insufficiency (CCSVI) - Go to this website for more info: http://ccsvi.org/




11 comments:

  1. You're an inspiration to us all...God Bless you!

    -John Trent

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  2. Marjorie - I am thankful for those little things for you as well. Has any of this helped your swallowing issue (or do you expect it too)? Based on the stuff I read that seemed like a possibility.

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  3. Thanks Cheri. No relief yet on the throat pain. Sure would be nice! Fingers and toes crossed.

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  4. Thanks for updating! I was just thinking about you earlier and wondering how you are doing. Can't wait to give you a big hug and see that beautiful necklace! Praying for continued improvement and praising God for how He is working in your life!!! xoxo

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  5. marjorie, your blog rocks and so do you! lots of love, lisa

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  6. Marjorie, thanks for telling us of your improvements. It is so important to note the small improvements that accumulate to make people feel 'better'. Some of us would settle for no progression anything better than that is a great boon.
    Michele

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    1. Absolutely Michele! I appreciate the little things so much now. :))

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  7. Marjorie, I've been knowing about you thru my friend, Susan Fulkerson and helping out with the bike ride fundraiser for a few years...but this is the first year I've read thru your blog and followed these amazing developments. I'm so grateful you experienced some small but very significant changes with your treatment....that really aren't so small at all when you list them out! That is very hopeful. And hope is such a great thing! Will pray for your heart and spirit along with your body as you continue this journey. This is a verse I carry in my purse that has meant the world to me..."I look to the mountains; does my strength come from the mountains? No! My strength comes from God who MADE heaven and earth and mountains. He won't let you stumble. Your Guardian God won't fall asleep. Not on your life. Israel's guardian will not doze or sleep." Psalm 121:1-4
    Take care, martha keim

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    1. Thank you Martha. Thank you especially for the verse.

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  8. Everything is very clear.It was truly informative.Your website is very useful.Thank you for sharing.ccsvi Germany

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